September 2, 2014

On September 2, 2014, I was 34 weeks and 5 days pregnant, going in for my weekly doctors appointment when she told me that not only is baby girl still not growing and having unusual heart issues but baby boys heart is doing something unusual so today is the day were taking them out.  The only thing going through my mind at that point was after today I will officially be a mother.  A mother to possible twins, assuming baby girl does well and at this point also baby boy.

After a few hours of being monitored it was time for the whole sha-bang.  They took me into the white room, where I got my epidural and soon after where there was a white sheet covering my belly and below.  As soon as the doctor came in, I knew it was time.  Dad was able to come in and there they go cutting away.  I remember I was freezing to the point that it distracted my mind from everything that was going on and thats probably a great thing.

They were born 10:23 pm and 10:24 pm.  Our son Eidan came out first weighing 4.5 lbs and oh my goodness he was a dream come true.  He was having heart issues because he was wrapped around his umbilical cord four times.  Thank God the doctor took him out that day.  Our daughter, Eva weighed 3.5 lbs and was hauled away and I didn’t get to see her until I was in recovery where they brought her to me and informed me they would be sending her to another hospital the same night.  Comes to find out on the Apgar score she rated between a 2-3.  She wasn’t doing the best but she was alive and she literally came out fighting like a champ.

When I first saw Eva, she was in a incubator and it was very difficult to see her without wondering what her future was going to look like.  She was very puffy all over with severed edema  on her hands and feet.  Under her head there was a pillow of skin (called a cystic hygroma) that sat under her head.  We knew these things were there because it is part of turners syndrome and thanks to the ultrasounds it gave us an idea of how large it these things were, but nothing could prepare us for how it looked like in person.

When I went into my room after recovery I was left exhausted, physically, mentally and emotionally.  As I look back I realized something special…  I feel like if Eva wouldn’t have survived the pregnancy Eidan would have either, and, if Eidan wasn’t having trouble with his umbilical cord and forced us to have the c-section that day, then I believe Eva wouldn’t have been able to survive much longer.  So in a way they both saved each other.

 

IMG_1125
Eidan Knight Devereux
IMG_1153
Eva Kirley Devereux

 

Advertisements

There’s Something Wrong.

IMG_0553
Eidan on top, Eva on the Bottom.

Between  April 1st, the time we posted on Facebook that we were expecting twins, and April 10th of 2014 when we were to go to New York to visit family,  we had another doctors appointment that changed our lives.  But this time it was the most devastating news any expecting parents could possibly hear, “there’s something wrong with one of them.”

As soon as we heard the news I cried.  I cried  harder than I ever cried before, I’m sure of it.  I was on a cloud with the last doctors visit, but this time I was at an all time low.  I was told that one child will not survive the pregnancy (this was the one and only time they mentioned abortion and I remember my husbands reaction to that was as if the doctor told him something offensive… It was never mentioned to us again).  Well, we got the same unfortunate news confirmed by another doctor as well as a specialist soon after.  In the ultrasound, it showed a very large cystic hygroma on the back of her neck, a cystic hygroma is basically a very large pocket of skin filled with cysts inside.  They also saw hydrops around her heart and her abdomen, which is an accumulation of fluid around these areas.  They mentioned that she probably had something called Turners Syndrome because of everything the ultrasound showed.  They also confirmed we were have a boy and a girl during this time.  On paper were blessed with a dream come true but in reality it seemed like we were in a nightmare.  Looking back I wish I would have had more faith in my daughter, my pregnancy and my Lord.

For the rest of the pregnancy in North Carolina I followed up closely with the specialist. Josh and I went to every doctors appointment expecting for them to tell us she passed away but that was so far from what actually happened.  In fact our last appoint in North Carolina, before I moved back to Houston, the specialist told us in a very surprised voice that our daughters hydrops looked better.  He mentioned that if in fact she did make it that she would be the second baby that he had ever seen survive after having such significant issues in utero.

I must mention that after the babies were born, the specialist called me himself to ask about her.  I proudly informed him that they were both doing well but it was going to be a long road for her.  At that point I had no idea how long and bumpy it was going to be but I am happy that I had such a wonderful team during our pregnancy in North Carolina.