Between April 1st, the time we posted on Facebook that we were expecting twins, and April 10th of 2014 when we were to go to New York to visit family, we had another doctors appointment that changed our lives. But this time it was the most devastating news any expecting parents could possibly hear, “there’s something wrong with one of them.”
As soon as we heard the news I cried. I cried harder than I ever cried before, I’m sure of it. I was on a cloud with the last doctors visit, but this time I was at an all time low. I was told that one child will not survive the pregnancy (this was the one and only time they mentioned abortion and I remember my husbands reaction to that was as if the doctor told him something offensive… It was never mentioned to us again). Well, we got the same unfortunate news confirmed by another doctor as well as a specialist soon after. In the ultrasound, it showed a very large cystic hygroma on the back of her neck, a cystic hygroma is basically a very large pocket of skin filled with cysts inside. They also saw hydrops around her heart and her abdomen, which is an accumulation of fluid around these areas. They mentioned that she probably had something called Turners Syndrome because of everything the ultrasound showed. They also confirmed we were have a boy and a girl during this time. On paper were blessed with a dream come true but in reality it seemed like we were in a nightmare. Looking back I wish I would have had more faith in my daughter, my pregnancy and my Lord.
For the rest of the pregnancy in North Carolina I followed up closely with the specialist. Josh and I went to every doctors appointment expecting for them to tell us she passed away but that was so far from what actually happened. In fact our last appoint in North Carolina, before I moved back to Houston, the specialist told us in a very surprised voice that our daughters hydrops looked better. He mentioned that if in fact she did make it that she would be the second baby that he had ever seen survive after having such significant issues in utero.
I must mention that after the babies were born, the specialist called me himself to ask about her. I proudly informed him that they were both doing well but it was going to be a long road for her. At that point I had no idea how long and bumpy it was going to be but I am happy that I had such a wonderful team during our pregnancy in North Carolina.