NEW YEAR- Brand new goals.

My oh my.

I will have to start off by saying 2016 was uneventful in comparison to our past two previous years, and it was great.  So while most people hated last year, I will have to be completely honest and say, I loved it.   Eva only had one surgery, that was to correct her fundoplication and repair her hernia, other than that she has been out of the hospital, praise God!  Eidan did have a scare that we are unsure of, but we are still following up on it and he seems to be fine, God willing.  My husband is safe, and unfortunately nowadays police officers safety is non exsistent.  Last but not least I am working on my business, peculiarly perfect,  which should be launching this month and I am thrilled!

GOAL 1– Get the company up and running by January 15.  Peculiarly Perfect is a clothing line, for children with special needs and all children alike.  The purpose is to bridge the gap (that us parents that have children with extraordinary needs knows all too well) between our children and other curious minds.  There will be two collections launching, one collection will target children’s specific needs, and the other  will be for children to support anyone that is different.  We are all so very wonderfully uniquely made so the faster our kids know that, the better.  I am excited to have a section on the website that features a spotlight child monthly to educate people about our children that have these differences and also to remind everyone that what they have does not define them, it is simply a part of them.

The babies toddlers are taking so many new turns that it has inspired me to also start an instagram account for them (GOAL 2), where I can post daily updates and possibly reclaim my own personal account for myself.

GOAL 3– Be a better wife, mother and build a better relationship with the Lord because Lord knows I need it.  I am doing this with the help of a therapist and this is something that should have been done a lot earlier.  I have allowed a lingering of bad thoughts consume every part of me for a few years now, and I am so ready to throw that shit out of the door.

GOAL 4– Attempt to do a weekly blog…. I said attempt.

I am so excited about this new year, but as that excitement wears off in a few weeks I have chosen to be more excited about every day I have.

Less phone-more attention to everyone especially the kids.  Less talking- more listening.  Less fighting-more loving.  Less “the office”-more “the office”, who am I kidding, I love Dwight K. Schrute.

 

 

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Introducing…Eidan Knight Devereux

So Eidan was in the NICU for over two weeks and when we originally were planning on taking him home, he had an apnea spell (he stopped breathing for a little while so they had to stimulate him to get him to breath again, which happens sometimes in preemies) so that held him back a few more days.  They reassured me that because it happened only one time, it shouldn’t happen again, but as traumatized as I was I insisted on taking him home on a home apnea monitor for a month.  When they released him to us, I was so scared that I am sure the nurse who discharged him was concerned.  Shit, I was concerned.  He was so tiny and I had no idea what I was doing.

I was scared to change his diaper, bathe him, change his clothes, hold him, and leave him alone in the room, so I never left the room while I was home.  The only time I would leave him was to go see Eva in the hospital and then dad would watch him.  There was a very, very short list of people that were allowed to watch him when dad and I had to go to the hospital together during Eva’s surgeries.  No one was allowed to come over to prevent any of us from getting sick.  I was absolutely terrified of everything at this point of my journey.

On December 22nd Eidan had to have his own surgery on a very large inguinal hernia.  This hernia was the largest hernia many doctors said they had seen, (you can imagine our horror when they told us).  The only good thing about that surgery was he was one floor away from Eva’s in the same hospital.  That was the closest they had been since they were born, so for 3 days dad and mom finally caught a break… we only had to hop onto an elevator to visit each of them instead of me having to leave Eidan at home with dad to see Eva in the hospital, and then leave Eva at the hospital to go back home to Eidan.

Not to mention, Eidan had also developed hemangiomas  a few weeks after he was born. During one of his his doctors appointments they were concerned that he has a total of 11 which any more than 4 is cause to be concern for possible issues on a number of organs. At that point they also heard a heart murmur but praise God after having an echocardiogram it turned out to be something called an innocent murmur and the hemangiomas have gone away completely.  Despite all of the health concerns we had for Eidan it was nothing compared to everything his twin sister, Eva had to go through.